CANCER101 has compiled a short list of resources by topic to help narrow your search. This list will get you started on your journey for knowledge, data and support. Most organizations listed in this section offer much, much more than suggested by each topic breakdown. Visit their websites or call the organizations to learn more about what they offer.
The inclusion or omission of websites and resources does not imply an endorsement or lack of endorsement by CANCER101. You should always consult your healthcare team for advice and care appropriate for your specific medical needs. To find resources specific to a cancer type, please refer to Navigating Cancer.
Caregivers
Caregiver Action Network
202-454-3970
http://www.caregiveraction.org/
SuperSibs!
888-417-4704
www.supersibs.org
Teens Living With Cancer
585-563-6221
www.teenslivingwithcancer.org
Clinical Trials
ClinicalTrials.gov
1(301)496-4000
www.clinicaltrials.gov
Coalition of Cancer Cooperative Groups, Inc.
1(877)520-4457 toll free
www.cancertrialshelp.org
National Institutes of Health
1(301)496-4000
www.nih.gov
Chore Coordination
CareCalendar
www.carecalendar.org
Cleaning for a Reason
1(887)337-3348
www.cleaningforareason.org
Complementary & Alternative Medicine
National Center for Complementary and Alternative Medicine (NCCAM)
1(888)644-6226 toll free or 1(301)519-3153
www.nccam.nih.gov
Connecting & Communicating
CaringBridge
1(651)452-7940
www.caringbridge.org
Imerman Angels (matches patient to a survivor)
(877)274-5529 toll free or (312) 274-5529
www.imermanangels.org
MyLifeLine.org Cancer Foundation
1(720)883-8715
www.mylifeline.org
Drug Information
Food and Drug Administration – Cancer Liaison Program
1(888)INFO-FDA (463-6332) toll free or 1(301)827-4460
www.fda.gov/forconsumers/byaudience/forpatientadvocates/cancerliaisonprogram/default.htm
NLM Drug Portal
druginfo.nlm.nih.gov/drugportal/drugportal.jsp
Emotional Support
Workplace Issues
Cancer and Careers
1(646)929-8032
www.cancerandcareers.org
Cancer Legal Resource Center
1(866)THE-CLRC (843-2572) toll free or 1(213)736-1455
www.drlcenter.org
Hospice & End-of-life
Hospice Education Institute
Machiasport, ME 04655
1(800)331-1620 toll free or 1(207)255-8800
www.hospiceworld.org
National Hospice Foundation
1(877) 470- 6472
www.nationalhospicefoundation.org
Financial Assistance
CancerCare, Inc.
1(800)813-HOPE (813-4673) toll free or 1(212)712-8400
www.cancercare.org/financial
GiveForward
pages.giveforward.com
HealthWell Foundation
800-675-8416
www.HealthwellFoundation.org
Hill-Burton Free Hospital Care
1(800)638-0742 toll free
www.hrsa.gov/gethealthcare/affordable/hillburton/index.html
NeedyMeds, Inc.
www.needymeds.org
Patient Access Network Foundation
1(866)316-PANF(7263) toll free
www.panfoundation.org
Patient Advocate Foundation
1(800)532-5274 toll free or 1(757)873-6668
www.patientadvocate.org
General Information
American Cancer Society (ACS)
1(800)ACS-2345 (227-2345) toll free
www.cancer.org
American Society of Clinical Oncology (ASCO)
1(888)651-3038 toll free or 1(517)483-1780
www.cancer.net
CancerCare, Inc.
1(800)813-HOPE (813-4673) toll free or 1(212)712-8400
www.cancercare.org
National Cancer Institute (NCI)
1(800)4-CANCER (422-6237) toll free or
1(301)451-6879
www.cancer.gov
National Health Information Center
1(800)336-4797 toll free
1(301)565-4167
www.nhic.org
Hereditary
Bright Pink
Chicago IL, 60654
www.bebrightpink.org
Facing Our Risk of Cancer Empowered, Inc. (FORCE)
1(866)288-RISK (288-7475) toll free or 1(954)255-8732 or toll free helpline- 866-288-7475
www.facingourrisk.org
Genetic Alliance, Inc.
1(202)966-5557
www.geneticalliance.org
Hereditary Cancer Center
1(800)648-8133 toll free or 1(402)280-2942
medschool.creighton.edu/medicine/centers/hcc/index.php
Hotlines
American Cancer Society
Many language transations offered. Call to learn if they can help you in your native language.
1(800)ACS-2345 (227-2345) toll free
CancerCare, Inc.
1(800)813-HOPE (813-4673) toll free or 1(212)712-8400
Body Image
Look Good…Feel Better
1(800)395-LOOK (395-5665) toll free
www.lookgoodfeelbetter.org
Shop Well With You
1(800)799-6790 toll free or 1(212)226-0466
www.shopwellwithyou.org
Intimacy
American Association of Sexuality Educators, Counselors and Therapists
1(202)449-1099
www.aasect.org
Insurance
Get Covered America
http://getcoveredamerica.org
HealthCare.gov
1(800)318-2596
www.healthcare.gov
CoverageForAll.org
www.coverageforall.org
Legal
Cancer Legal Resource Center
866-843-2572
www.cancerlegalresourcecenter.org
National Cancer Legal Services Network
www.nclsn.org
LGBT Support
GLMA
Gay and Lesbian Medical Association
1(202)600-8037
www.glma.org
The Mautner Project
1(866)MAUTNER (628-8637) toll free or
1(202)332-5536
www.mautnerproject.org
National LGBT Cancer Network
1(212)675-2633
www.cancer-network.org
Lymphedema
National Lymphedema Network
1(800)541-3259 toll free or 1(415)908-3681
www.lymphnet.org
Medical Specialty Societies
American Association for Cancer Research
1(866)423-3965 toll free or 1(215) 440-9300
www.aacr.org
American College of Radiology
1(800)ACRLINE (227-5463) toll free or 1(703)648-8900
www.acr.org
American College of Surgeons
1(800)621-4111 toll free or 1(312)202-5000
www.facs.org
American Society of Clinical Oncology (ASCO)
1(888)282- 2552 toll free or 1(571)483-1300
www.cancer.net
American Society of Hematology
1(202)776-0544
www.hematology.org
American Society of Plastic Surgeons
1(888)475-2784 toll free or 1(847)228-9900
www.plasticsurgery.org
American Society of Radiation Oncology
1(703)502-1550
www.astro.org
National Society of Genetic Counselors
1(312)321-6834
www.nsgc.org
Nutrition
American Institute for Cancer Research
Sponsors research and provides information on the link between nutrition, fitness, and cancer
1(800)843-8114 toll free or 1(202)328-7744
www.aicr.org
The Cancer Project
1(202)244-5038
www.cancerproject.org
Pain
American Chronic Pain Association
1(800)533-3231 toll free or 1(916)632-0922
www.theacpa.org
Global Access to Pain Relief Initiative
www.gapri.org
Pregnancy & Fertility
Hope for Two…The Pregnant with Cancer Network
www.pregnantwithcancer.org
MyOncofertility.org
1(866)708-FERT (3378) toll free
www.myoncofertility.org
Religious Support
F.R.I.E.N.D.S.
Christian Care Center
904- 270-9707 ext. 427
www.friendschristiancancercare.com
Sharsheret (Jewish)
1(866)474-2774 toll free or 1(201)833-2341
www.sharsheret.org
Research
American Association for Cancer Research
1(866)423-3965 toll free or 1(215) 440-9300
www.aacr.org
National Cancer Institute (NCI)
1(800)4-CANCER (422-6237) toll free
www.cancer.gov
Retreats
Most of the retreats are free or charge low fees. Call to learn more.
Betty J. Borry Breast Cancer Retreats
1(603)868-7599
www.bjbbreastcancerretreats.org
Camp Make-A-Dream
1(406)549-5987
www.campdream.org
Commonweal Cancer Help Program
1(415)868-0970
www.commonweal.org
Kokolulu Farm and Cancer Retreat
(808)889-9893
www.cancer-retreat.org
Life Beyond Cancer Foundation
(1800) 282- LBC (5223)
www.lifebeyondcancer.org
Smith Farm Center: Cancer Help Program
1(202)483-8600
www.smithfarm.com
Stowe Weekend of Hope
1(888)247-8693 toll free
www.stowehope.org
Survivorship
Cancervive
1(310)203-9232
www.cancervive.org
Lance Armstrong Foundation
1(877)236-8820 toll free or 1(512)236-8820
www.livestrong.org
National Coalition for Cancer Survivorship
1(888)650-9127 toll free or 1(301)650-9127
www.canceradvocacy.org
Transportation & Travel
Affordable accommodations
ACS Hope Lodge
1(800)ACS-2345 (227-2245) toll free cancer.org
Joe’s House
1(877)563-7468 toll free
www.joeshouse.org
National Association of Hospital Hospitality Houses Inc.
1(800)524-9730 toll free
www.nahhh.org
Free Air Travel
Air Charity Network
1(800)549-9980 toll free
www.aircharitynetwork.org
Corporate Angel Network, Inc.
1(866)328-1313 toll-free patient line or 1(914)328-1313
www.corpangelnetwork.org
Wigs
Halos of Hope
www.halosofhope.org
Young Adults
Planet Cancer
myplanet.planetcancer.org
Stupid Cancer
1(877)735-4673 toll free or 1(646)861-2565
www.stupidcancer.org
Young Survival Coalition
www.youngsurvival.org